Відео

Thank you for this. My GP literally asked me what tests he should do to determine if I have lupus. I have a whole host of symptoms, but the blames all of them on my Hashimoto’s. I’m going to show this to him.

I really had a blast doing this interview and I really appreciate Lupus LA providing a great platform for us to be able to share my story and be able to let the world know about lupus and especially from a mans point of view. As I always say I'M DRUMMING TO A DIFFERENT BEAT AND THAT'S TO BEAT LUPUS. #BEATLUPUS

My joints and muscle hurt wo bad to could it be the heat,thankyou 8m tring these excercises,I to the point where anyth8ng hurts after I had a 20min seizure,thankyou for this video

I was diagnosed with SLE while in my late 40's after complaining of joint/hip pain. I am currently in my early 70's (and a white male, go figure). My PCP referred me to a rheumatologist who, after running more tests, confirmed for a fact that I had Lupus. I was handed an information pamphlet and sent home with no follow-up. I think that the only parting advice from the doctor was "Stay out of the sun." Looking back, I must have had SLE for years due to chronic anemia. I also had been diagnosed with Wolf-Parkinson-White Syndrome where the anemia exacerbated my SVT episodes. Without proper care from a qualified specialist, things went from bad to worse over the next year. Over a 6-month period, I had 2 myocardial infarctions and 3 DVT episodes. After the second DVT, I had surgery to implant a greenfield filter. After the myocardial infarctions, surgeons performed an angiogram but found no heart damage or obstructions. Every time I had a DVT event, I had to go on disability for up to 6 months and stay off my feet and be on strong pain medications and anti-coagulants. I had also lost over 30 pounds over time. I was fortunate enough to have a conversation with one of my wife's co-workers who had Lupus. She had been fighting the disease for many years. She was under the care of Dr Daniel Wallace and strongly encouraged me to get a referral and an appointment to see him. Dr Wallace did more for good for me in one month than my other doctors did in years. I honestly feel that he saved my life. I recently had my fourth clean PET scan in the last 15 months after a 5-month chemotherapy regiment for treating my stage 4 non-Hodgkins lymphoma. It would be great to meet Dion some time just to swap stories. I am also a former drummer.

Why is my alkaline phosphatase elevated. Most recentmy 990. DX 2005 connective tissue diwe are from elevated liver studies, positive ANA then +ANA panel.

Does anyone believe President Trumps had ever heard of hydroxychloroquine until Birx or Fauci mentioned it?

what about sjowgrens syndrome thank you

Please speak a little bit louder please your voice is beautiful but unsound so far away

5 or 10 minute yoga every day was very beneficial. I couldn't move much before, way too much pain.... so much better now.

Disappointed to see this multi-level marketing company on the Lupus LA channel. Lots of misleading info and unsubstantiated claims offered in this video. 😡

Which sunscreen does Dr Thomas use on himself?

🌹

What a great dr. Thanks for your information.

It's helpful for me thankx

Hii

I also don't like the taste of turmeric. I add turmeric to food with other spices and strong flavors that hide the turmeric taste. Examples include lentil soup (eg Turkish or Indian dal), a little in salad dressing with kalamatta olives, and of course foods with Indian or Trinidad spices (eg chana/chole masala, Trinidad channa).

Thoughts on nad+ iv and methylene blue?

What about drug induced lupus?

Hi l

Wow! I want you as my doctor!

Add PSA....

For lady issues try looking into Medicine Mama products. Fantastically helpful!!

I'm not sure why environmental toxins are treated as woo woo in today's culture. There are so many incredibly un-natural chemicals that we are exposed to in this current man made world that we are just not able to process. I mean animals in the wild living in pristine rainforest environments are dying from toxin related exposures.

ANTI DEPRESSANTS? Are you serious? Please educate yourself about the fake mechanisms of SSRIs. Hard pass. Drug pusher. Why are you not advising K2 with D3? Prednisone won’t “cause” Osteo, lack of K2 causes osteo. Sleep study? Omg. You’re not a wellness advocate, you’re a capitalist. CPAP? You’re not even investigating gut biome which causes apnea. STUMBLED UPON INTERMITTENT FASTING???? OHMYEffingGOD. You are just a compilation of topic sentences and headlines. YOU ARE DANGEROUS. The epitome of an AMA doctor who only has partial knowledge. Enjoy your expensive house and cars, while your patients scrape up finds to pay you for 20-30 years.

This would be a solid video if not for the obvious, grotesque pleasure this guy gets out of humbling a patient he has quite a bit of power over - repeatedly stressing in the video how humbling her turned her from a frowny black woman to a happy smiley black woman and gloating over how she was forced to beg to come back to his practice. Rheumatologists are thin on the ground. Really goes to show how doctors can get away with absolutely repulsive attitudes toward patients.

sun cream

Its lyme and co infection!!!

Its lyme and co infections!!!

Chair Yoga or Chair QiGong for those too tired to exercise

Can an ear infection cause a positive ANA 1:80?

I just got diagnosed at 63 yo. This video made me feel like I am not alone. Many thanks.

One of the best videos I have watch ever explaining causes and connections in SLE ! And I watch and read a lot since I want to put my Lupus in remition. Thank you ! Gracias !!! ❤

The biggest problem for me is suffering so long and consistently have positive ANA for both Lupus and Sjorgrens is the lack of input from the doctors!! They just don't seem to want to help you unless your numbers are really high! I'm absolutely frustrated with the attitude where I live! They just ignore you

Exactly❣️

I have lupus and sjogrens I have dry mouth eyes it affects my gums example swelling and discomfort

I also have anemia, and take a vitamin for that and also vitamin D3.

I have all the side effects of hydroxychloroquine, so I cannot take it. Exercise I can do and I have started doing chair yoga.

Really appreciate this info!

Hola, hello beautiful world God Almighty bless all ❤️soo sorry u had to face such let down , thank God all things came together for u dr God bless u

Hello I'm a 65-year-old male been in chronic pain for a very long time, many years. From joint pain to neck back shoulders chest and more. Because I told them I was in chronic pain they label me a drug seeker . I could get no help from anybody for years and have suffered greatly. Last week I went to the hospital twice. The first time for breathing and chest pain. That's when they found out I basically need a heart transplant have everything you're talking about with my heart the second visit to the hospital same week had a stroke. My primary doctor sent me for Lupus test on the 8th yesterday. I've had an autoimmune disease for a while they just didn't know what it was for years. I'm just wondering if there's any hope for me at all now that im sure blood tests will come back Lupus all these years

Hope you are feeling better and on a road to recovery. Thank you for sharing.

Will this work for alopecia areata?

When I exercise; it makes my face turn tomato red, it also exhausts me, and I end up being down for two days after I am down. Should I suggest Antifrolumob? I do take high dose EPA 1200mg - In form of Omega 3 form fish oil it also has higher dose of DHA 900 mg. 4080 mg fish oil. I do try to walk three times a day. Not much over 2 miles a day. But it’s what I can tolerate.

Enjoyed the video.

Great update. Very promising updates on car t

Question regarding, "lupus burning it self out with menopause". I went through menopause over 10 years ago & I'm just now looking at a possible Lupus diagnosis. After a month of waiting for a Rheumatologist appointment, I see him tomorrow for the 1st time. My cardiologist actually believes I have lupus & referred me to a Rheumatologist. My labs & symptoms are all pointing at Lupus. Fingers crossed that it's my Raynauds & hi bp/cholesterol meds causing all the havoc on my system. So...is it possible to still get Lupus after 10+ years of menopause?

What do I eat to fix my gut problems.

I have this with rheumatoid and Sjögren’s syndrome I have been in bed this has ruined my life I am now getting testing for POTS and other Chronic pains

How long do we live

Is it possible to cure oral cancers and oral submucous fibrosis condition in future ?